I just wanted to keep everyone updated on Lorelei and her progress lately. Just to recap (in case you don't know) we went to her pediatrician in October to hear that she was "failing to thrive" again, and that she needed some physical therapy. Since then, we have had a feeding evaluation, been to GI doctor and started physical therapy. First, the feeding evaluation found that Lorelei has tongue issues with sweeping her food back and forth in her mouth. She has little tongue movement and poor right side chewing skills (her whole right side of her body is weaker than the left because of the bleed-we already knew that part). So anyway that explains why she doesn't eat a variety of foods-because she can't or she gets tired easily. It was really interesting that we just are now figuring this out. We should start feeding therapy through a speech therapist after Thanksgiving to address these issues.
So in addition to that, Lorelei is on reflux medicine again as well as an appetite stimulant. The two of these have helped her gain the weight back that she lost so she weighed in at the GI on Monday at 24 pounds 7 oz.! She hasn't grown length wise in about 6 months though. Anyway, GI also believes that she may have some sort of bacteria in her stomach, but this would be just a short term thing (like last two months) which could have caused the initial weight loss. So we are testing for that and are going to take antibiotics if it comes back positive. We will return to GI next month to discuss growth issues.
Lastly, Lorelei started back with physical therapy last month to work on some motor issues. She is not yet running or jumping at 2 1/2, which she should be doing. It goes back to not having the power on the right side of her body to do those things. Luckily we got to go back to her physical therapist from the spring, and Lorelei loves her! It's hard work for her and she is so tired but she still loves Ms. Christy and loves to go.
So, that about sums it up for right now. I stay busy chasing down doctors, prescriptions and Josh and I both have been working on insurance to pay for the amount of both therapies that she needs. Lorelei is precious, precious and has the sweetest little heart! She is loved and adored by all her teachers, therapists, friends and family. Such a true blessing to her mama! So enjoy the pics, as usual, she will not look at the camera! (Anybody have tricks to get a two year old to look into the camera for more that 2 seconds?)
1 comment:
Thanks for the update. It seems like a great break through discovering the tongue issues.
Keep us posted! Hopefully we'll get to see you all sometime during the holidays!
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